This is an interview with Suzy Clement, a mother of two special needs children. Suzy is a photographer / artist and is married to Lenny Gonzalez, a videographer and musician. Their daughter Mielle is 14 years old and has Juvenile Myositis, a rare, autoimmune disease. She is still in treatment and is functioning well, given her challenges. Lucien is 9 years old and diagnosed with a form of autism. He is mostly non-verbal and requires help with all his daily needs.
Elizabeth Aquino, a past recipient of a CAREGIFTED Getaway, has been an active member of the epilepsy community, founding a non-profit foundation called PACE (People Against Childhood Epilepsy) that raised several million dollars for cutting edge research and eventually folded into CURE. She also served on the board of several non-profits serving the special needs community, including The Epilepsy Foundation of Greater Los Angeles and Realm of Caring.
UNDERSUNG, a film by Adam Larsen and Heather McHugh, will premiere in Vancouver, Canada at the DOXA Documentary Film Festival on Sunday, May 8th at 3:00 pm. CAREGIFTED is bringing 4 of the caregivers featured in the film (and also recipients of getaways) to participate in the opening celebration.
Jeneva interviews Lori Brozek about her experiences as a caregiver and journal publisher.
Jeneva Burroughs Stone is a caregiver for her son, who has a rare disease that has left him profoundly disabled.
Jessica secretly applied for a CAREGIFTED getaway on behalf of her parents, Alice and Jeff, who care for adult son, Josh.
In addition to her many talents, Kim is also the mother of two children living with Juvenile Arthritis and has written a very good book based on her research and experience called Living with Juvenile Arthritis: A Parent’s Guide.
Have you missed CAREGIFTED’s blog post?! Our blog has been resting while the CAREGIFTED crew has been vigorously working behind the scenes. We are excited to announce our newest feature to our webpage: monthly musings for caregivers by caregivers. Among our first featured writers will be Suzanne Edison. Read on for a deeper introduction to her!
(Photo of Crossing Paths–Dinh Q. Lê, 1997)
THANK YOU to everyone that participated in our CAREGIFTED Art Works auction. A deep bow of gratitude to the authors who donated their time to review in-development manuscripts.
Seattle NPR stations KUOW and KPLU both aired feature stories this week on poet Heather McHugh's groundbreaking non-profit Caregifted to promote the November 25th Caregifted Arts Works Manuscript Critique fundraiser.
On Tuesday, November 25, 2014 many of America’s best writers plan to publically offer exclusive manuscript critiques.
When you experience a lecture by Heather it is unclear, as The Stranger puts it, whether she is "reading poetry or speaking freely because the constant wordplay of her everyday language is so delightfully over the top, like an exquisite costume."
“Whirlyjoy” is the blog name for Joy Daniel who writes about “Life in the Spin Cycle” as a single mother of two coming-of-age daughters and a host of supporting characters.
After fourteen years of undiagnosed symptoms, Jeneva and Roger Stone’s son Robert was found to be the 9th reported case, worldwide, of a rare genetic disorder, Dystonia 16. Since he was thirteen months old, he has been challenged by disabilities in mobility, speech, feeding and overall muscular deterioration.