News & Announcements

The New Normal

Tanya Savko writes about her experience  as the mother of two adult sons, one of whom, Nigel, is autistic, epileptic and bi-polar. Her blog, “Life in the Different Lane”,  focuses on her efforts to give her son an independent life.

Decisions to Dance and Sing and Slay

Lisa Peters’ blog, On a Life Less Perfect, illuminates the fierce nature of decision-making confronted by long-term caregivers.

Defining Our Own Narrative

After fourteen years of undiagnosed symptoms, Jeneva and Roger Stone’s son Robert was found to be the 9th reported case, worldwide, of a rare genetic disorder, Dystonia 16. Since he was thirteen months old, he has been challenged by disabilities in mobility, speech, feeding and overall muscular deterioration.